November 24, 2014
 
 
Patient Advocacy & Consultation
 

The MDFF recognizes the physical, emotional, and financial burden put on individuals with MD and their families. 

 
The MDFF serves as an advocate.  In addition to helping clients with medical issues, staff is also available to provide guidance in the area of disability rights, whether it will be in giving advice on an Individual Education Plan (IEP) or referring State and Federal benefit programs.
 
There are national and local chapters of certain types of MD also available to provide individuals with MD and their families more specific information.  Here is the list of their contact information that might be helpful for you (click the title to visit the website):
 
National Headquarters
2300 E. Sunrise Drive
Tucson, AZ 85718
1-800-572-1717
(317) 824-4800 Indianapolis MDA office
 
925 Busse Road
Elk Grove Village, IL 60007
info@fsma.org
1-800-886-1762
 
ALS Association
Fighting Lou Gehring Disease
National Headquarters
1275 K Street NW, STE 1050
Washington, DC 20005
1-800-782-4747
Indiana office: (317) 915-9888
Indiana email: info@alsaindiana.org
 
Leading the Fight to End Duchenne
401 Hackensack Avenue, 9th Floor
Hackensack, NJ 07601
1-800-714-5437
info@parentprojectmd.org
 
Family Voices Indiana 
The Indiana Family-to-Family Health Information Center
4060 W 400 S
Lebanon, IN 46052
(317) 944-8982
info@fvindiana.org
 

The Muscular Dystrophy Family Fund provides service to children and adults regardless of races, ages and genders.