Muscular Dystrophy Family Fund
(Previously Known as Muscular Dystrophy Family Foundation)
Administered by The St. Vincent Foundation
1033 Third Avenue SW, Suite 108, Carmel, IN 46032
Phone: (317) 249-8488, (317) 615-9140
Fax: (317) 853-6743
Through the life services of Advocacy, Education and Consultation, Muscular Dystrophy Family Fund will enhance and strengthen the lives of individuals with neuromuscular diseases and to provide, or direct their families to valuable resources in helping our clients become successful contributors to the community.
MDFF exists to provide resources, services, and adaptive equipment to enable patients with neuromuscular diseases and their family members to live independent and productive lives. The resources include the areas of:
- Emotional Support
- Individual Education Programs (IEPs)
- Sponsorship of Clinics
- Neuromuscular Community
Thanks to the generosity of our donors, the MDFF continues to succeed in its mission to provide adaptive equipment and emotional support to individuals and families affected by one of over 40 neuromuscular diseases.
History of MDFF
The Articles of Incorporation for the “Marion County Muscular Dystrophy Foundation” were approved and filed on May 2, 1958. The purpose of the organization was to “Fight Against Muscular Dystrophy”, “Care for Victims of Muscular Dystrophy”, “ Cure Muscular Dystrophy ” and “ Educate the Public about Crippled Children ”. The yearly budget was $36,000 and the Foundation provided service to 76 children and family members .
The Foundation has come a long way in providing service since then. No longer do we refer to individuals with any type of disability as a “victim”, and “crippled” is no longer acceptable in today’s society. While some agencies are still seeking a cure, the Foundation now strives to meet the daily needs of individuals and families.
In 1976, the foundation was providing services to 197 families throughout Indiana , primarily meeting the medical needs of children with Duchenne Muscular Dystrophy or Spinal Muscular Atrophy. The Foundation provided recreational activities, clinic and research studies by Dr. Charles Bonsett. Inclusion in public schools was rare and many children with MD either didn’t go to school or were placed in a special school for “crippled kids”.
In 1994, the agency’s budget was $224,000, it met the needs of 413 families. In 1997, the agency became the Muscular Dystrophy Family Foundation , adopted the slogan “ No Boundaries ”, and designed its first logo. Services were offered on a national level in January 1998 to anyone with one of forty-three neuromuscular diseases. 2,652 families were served by the MDFF in 2003, with the agency providing wheelchairs, hospital beds, van lifts, ramps for homes, breathing machines, shower chairs and assistance with funeral expenses.
On August 31, 2007, the Muscular Dystrophy Family Foundation became The Muscular Dystrophy Family Foundation/dba/The No Boundaries Family Foundation. We also changed our mission statement to reflect NBFF’s vision for all individuals to live with “ no boundaries ”. Our mission statement is as follows: “Through the life services of Advocacy, Education and Assimilation, Life without Boundaries can enhance and strengthen the lives of individuals with neuromuscular disease and their families”.
In December 2011, MDFF merged with St. Vincent Foundation and it is now an Indiana based agency that limits our funds to assist and support Indiana clients. This merge will not change our mission established through the past 53 years; instead, it empowers us to partner with the St. Vincent Hospital and the Peyton Manning Children's Hospital for more programs and services offered to neuromuscular community.
The Muscular Dystrophy Family Fund provides services to children and adults regardless of races, ages and genders.