|
You don't have to face neuromuscular diseases alone. Each year, hundreds of people with a neuromuscular disease, and their loved ones, turn to the MDFF for support. We offer comprehensive support programs to ensure clients' medical and emotional needs are taken care of. Our staff and medical directors from our clinics will help you through every stage of your family journey. From wheelchairs to van lifts to communication devices and beyond, we can help you get the equipment you need to live with No Boundaries®. FUNDING
MDFF is funded by direct contributions of cash, stock, gifts in-kind, estates, wills and trusts, from individuals and businesses, corporate sponsors, and proceeds from special events. MDFF is one of the restricted funds that administered by St. Vincent Foundation located at Indianapolis, Indiana. MDFF is an Indiana local agency that offers financial assistance to Indiana residents only.
STAFF MDFF currently has only one part-time staff to manage daily operations. Ms. Pei-Ming Sun, Director of Services, original from Taiwan, has got her Master Degree in Science from University of Maryland Graduate School in 1994 and worked for Eli Lilly and Company from 1998 to 2008 in discovery research, clinical development, later in quality and regulatory affairs areas. Pei-Ming's second son has been diagnosed with Duchenne Muscular Dystrophy. Being a client family of MDFF since 2004, Pei-Ming and her family have involved with MDFF annual social events, fundraisers, grant writing, and website development through the past eight years. With appreciation for what MDFF has helped her son and family, starting July 2011, she is now paying forward her services to other families that are facing similar challenges to deal with neuromuscular diseases. As an experienced Toastmaster in Public Speaking, Ms. Pei-Ming Sun is available to offer speeches, presentations, or workshops related to neuromuscular diseases. These topics might include Family Coping with Neuromuscular Diseases, Advanced Scientific Approaches for Muscular Dystrophy Clinical Trials, and Our Journey with DMD. MDFF ADVISORY COMMITTEE
This committee will meet regularly to review financial requests, approve operational costs, provide feedback to our programs and services. The MDFF Advisory Committee includes: Mrs. Anne Coleman, R.N.
Administrator for the Peyton Manning Children's Hospital at St. Vincent and St. Vincent Women's Hospital Mr. Rob Baker
Director of Finance and Gift Planning
St. Vincent Foundation Dr. Denise Carpenter, MD (MDFF Children Clinic Medical Director)
Pediatric Physical Medicine and Rehabilitation
Peyton Manning Children's Hospital at St. Vincent Mr. Derek Miller, ATP, CRTS (MDFF Board President)
VP Rehab Home Health Depot Ms. Emily Munson, JD, MA (MDFF Board Vice President) Mrs. Becky Doyle (MDFF Treasurer) Mrs. Holly Settles (MDFF Secretary)
Regulatory Affairs Consultant Elano Animal Health,
Eli Lilly and Company Dr. Fengyi Kuo, DHS, OTR, CPRP
Clinical Assistant Professor
IU School of Health and Rehabilitative Sciences Mr. Tim Doyle, CPA Principle DOZ (Dauby O’Connor and Zaleski, LLC) Mr. Dudley Taylor
Indianapolis Fire Department Battalion Chief Mr. Jason Settles
Computer Consultant
The Muscular Dystrophy Family Fund provides services to children and adults regardless of races, ages and genders.
|